DREPACARE
To improve the quality of life of people with sickle cell disease
Project start date : 01/01/2017
Last updated : 16/03/2022
Beneficiary country : Benin Congo (the Democratic Republic of the) Cameroon Gabon Mali Ivory Coast Senegal Niger (the) Burkina Faso France
What problem does the initiative address ?
Sickle cell disease is the most common genetic disease in the world. This genetic mutation that deforms and stiffens red blood cells is symptomised by very painful vaso-occlusive attacks, induced by the obstruction of blood vessels by half-moon-shaped blood cells, chronic anaemia, increased susceptibility to infections and other acute or chronic complications. Every year, 300,000 sickle cell children are born in Africa. In the absence of screening and adequate care, more than half of...
Detailed description of the initiative
The Drepacare application includes features that are useful on a daily basis to support sickle cell patients wherever they are.
The application has three main feature groups :
Personalised follow-up :
Pain : the patients select the location of their pain and the pain threshold. The recorded data generate histograms that the patient can then download and make available to their specialist doctor, either by email or during an appointment.
Hospital admissions: a hi...
What is the proposed solution added value ?
In Africa, access to smartphones is booming. In 2011, for every one billion inhabitants, there were 641 million SIM cards. After China, it is the market that is experiencing the highest growth rate, with nearly + 30% per year (source: Inaglobal). With these advances, the mobile phone makes it possible to provide e-health services.
Although it is a prototype, Drepacare is the first mobile application for personalised, preventive and informative monitoring for sickle cell patients ...
3 360
Number of beneficiaries since launch
3 Full-Time equivalents
N/C Employees
17 Volunteers
7 Service providers




3 360
Number of beneficiaries since launch
Target audience
- Healthcare professionals and structures (hospitals, healthcare centres/clinics, health networks)
- Sick people
- Children - adolescents (ages 6-18)
- Patient family/entourage
Project objectives
- Decreased mortality
- Improved treatment
- Other (please explain)
Materials used
- Cellular (mobile) phone
- Smartphone
Technologies used
- Mobile telecommunications (without data connection)
- Internet
- Mobile app (Android, iOS, Windows Phone, HTML5, etc.)
Offline use
Yes
Open source
No
Open data
No
Independent evaluation
Yes, auto-evaluated or evaluated by a related organization
About the sponsor
DREPACARE
DREPACARE is an association that fights to improve the quality of life of people with sickle cell disease. Its objectives are to inform, prevent, support and help people suffering from sickle cell disease through the creation of e-health tools, discussion groups and videos of information and testimonies.
Sector : Institutions (Communities, public authorities, NGOs, foundations, etc.)
Country of origin :
Contact : Sponsor website Project website
Partners
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La filière des maladies génétiques rares du globule rouge (MCGRE )
Healthcare (professionals and structures)
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MAKE SENS
Institutions (Communities, public authorities, NGOs, foundations, etc.)
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SAP
Industrial (Startups, enterprises, etc.)
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DORYS
Institutions (Communities, public authorities, NGOs, foundations, etc.)
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Fondation Deloitte
Institutions (Communities, public authorities, NGOs, foundations, etc.)